From the Editor's Desk
Genetic Technology: The Brave New World?
This issue of Family Futures examines some of the social, legal, political, and
ethical issues arising from recent advances and discoveries made in genetic research.
By Brian L. Wilcox |
4 |
Family Life Today
The Third Bite from the Apple
The knowledge generated as a result of the Human Genome Project will affect children and
families, indeed all our culture in profound ways.
By Gregg F. Wright |
5 |
Perspectives
Old Texts and “ Necessities”: Proceeding with Caution
The story of Carrie Buck, the first person eugenically sterilized under the authority of a
Virginia law, shows how “ fact” was used to mold public opinion and social
policy in the early 20th century.
By J. David Smith |
8 |
An Alternative View
Genetic Welfare of Social Welfare
Although new genetic research has altered the way that some problems are viewed,
policymakers should seek to balance the visions of Genetic Welfare and Social Welfare.
By Marque-Luisa Miringoff |
11 |
Innovations on the Frontline
Searching for the Genetic Roots of Spina Bifida
Doctors and researchers at Duke University Medical Center’ Section on Medical
Genetics are working to find the gene or genes associated with spina bifida.
By Karyn Hede George |
15 |
Genetic Counseling: A Resource for Families
Genetic counselors inform families about existing or potential genetic conditions they may
have and try to help them adapt and cope with their genetic conditions.
By Barbara Biesecker |
Action on the Hill
Recent Legislation on Genetics and Insurance
Congress and state legislatures have enacted or proposed laws to protect private genetic
information and prevent insurers from using it to deny or limit coverage, or to charge
higher rates.
By Helen R. Davis and Janice V. Mitrius |
20 |
Protecting Genetic Privacy
Legislation to protect access to genetic information must balance the privacy needs of
individuals with those who may have legitimate interest, such as health care providers and
researchers.
By Patricia Roche |
Courtwatch
A Family Affair: Should Plysicians Disclose Patients’ Genetic Information to
Potentially Affected Family Members?
Genetic technology is challenging the traditional physician-patient relationship. Recent
court decisions suggest that doctors may have to disclose information about patients’
genetic conditions to family members whose health or reproductive decisions may be
affected.
By Nanette Elster |
26 |
