SC TB PhotoVoice projects involve individuals who have either had TB themselves or have experienced it in other ways―perhaps through family members with the disease or close ties to affected members of their communities.
The first SC PhotoVoice projects focused on individuals living in the Pee Dee region of South Carolina, an area of the state with particularly high rates of the disease. In 2009, in a project co-facilitated by a translator, the scope was expanded to include individuals in the midlands of South Carolina who have resettled from Myanmar, formerly known as Burma.
Myanmar is considered to be a “high burden” country in international rankings of TB rates—so while individuals who resettle here may not have active TB, they have at minimum been at greater risk than many for exposure to it and have often witnessed the disease’s effects within their communities.
In both the Myanmar-focused group and the Pee Dee-based projects, involvement by participants is the same. They are asked to photograph the people, places, and things of importance to them in their daily lives within the context of how TB has affected them or those around them. The information gained from discussions of their photographs provides unique, personal perspectives on life with and among those with this potentially, but not necessarily, fatal disease.